Dystonia Association South Africa

(Incorporating Essential Tremor, Tourette's Syndrome

 and other Movement Disorders)

Reg No 004-729 NPO

P O Box 4351, Randburg, 2125 or 3rd Floor Standard Bank Building, Oak Avenue, Randburg 2194

Tel: +27 11 326 2112 Fax: +27 11 326 3041

e-mail dystonia@dystonia.org.za , Web www.dystonia.org.za
Office hours - 08.30 to 14.00 Monday to Friday
Urgent enquiries 082 357 6586
 

YEAR 2006/2007

WE ARE SPONSORED BY THE NATIONAL LOTTERY DISTRIBUTION TRUST FUND
 ADVERTISING SPONSORED BY ETv

 
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GUIDELINES TO COPE WITH THE EFFECTS OF DYSTONIA

1. Where do I come from?

Someone once said: “The body and the mind are more than married – they are intimately united, and when the one suffers, the other one sympathises”.

 Your body is your friend, or that is how you perceive your body without really thinking about it. Your body is an integral part of who you are. If you want to sense something, do something, achieve something you use your body. Your body is the vehicle through which you live and interact with the world around you. If something goes wrong with your body or it’s working then your once faithful companion and friend becomes a stranger, even your enemy.

Since your body and your mind is part of a unit, if something goes wrong with one part of the unit then the other part is affected by those changes too. When your body becomes your enemy then your mind reacts to it.  Your mind perceives these changes as a threat and will do various things in an attempt to combat the enemy and to get the faithful and trusted friend back. Since this is not possible you have to cope with the loss of a faithful friend and to cope with loss is always emotionally pain full and very difficult.

The conclusion that this brings us to is that deformity of your body is not merely physical, it is also psychological (personal & emotional) and social.

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