Dystonia Association South Africa

(Incorporating Essential Tremor, Tourette's Syndrome

 and other Movement Disorders)

Reg No 004-729 NPO

P O Box 4351, Randburg, 2125 or 3rd Floor Standard Bank Building, Oak Avenue, Randburg 2194

Tel: +27 11 326 2112 Fax: +27 11 326 3041

e-mail dystonia@dystonia.org.za , Web www.dystonia.org.za
Office hours - 08.30 to 14.00 Monday to Friday
Urgent enquiries 082 357 6586
 

YEAR 2006/2007

WE ARE SPONSORED BY THE NATIONAL LOTTERY DISTRIBUTION TRUST FUND
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Blepharospasm
Generalised Dystonia
Hemifacial Spasm
Laryngeal Dystonia
Oromandibular
Spasmodic Torticollis
Torsion Dystonia
Writers Cramp

Hemifacial Spasm
 

Hemifacial spasm is a movement disorder, which causes the muscles on one side of the face to contract. In its mildest form, Hemifacial spasm may cause no more than a slight inconvenience, although it may be disfiguring and socially embarrassing.  In more severe cases, it may interfere with vision.  However, since the other eye is usually unaffected, it rarely causes loss of sight. Hemifacial spasm affects both men and women and usually develops in middle age.  It is thought to affect more than 4000 people in U.K.

Hemifacial spasm may develop gradually.  Initially, the muscles surrounding the eye may be affected by muscle spasm.  The spasm may the spread to other muscles on the same side of the face, particularly the muscles of the jaw and mouth.  Some patients experience a clicking sound in the ear on the affected side each there is a muscle spasm.  Hemifacial spasm tends to affect the left side of the face more often than the right. It is usually less variable than Dystonia, although some sufferers do find that the condition worsens when they are under stress and improves when they lie down. 

The causes of Hemifacial spasm are not yet fully understood but current medical opinion suggests that the condition may be mechanical and caused by irritation of the facial nerve in the brain.  If you think you are suffering from Hemifacial spasm, you should visit your doctor.  You will probably be referred to a neurologist for further investigation and treatment. 

Surgery can be curative, although it is not suitable for most patients (currently not available in South Africa).  In addition, a range of other treatment options are available for sufferers, which can help to keep your symptoms under control.  A number of specialised surgical procedures are available for the treatment of Hemifacial spasm.  These are often effective but may be associated with potentially serious side effects.  In some cases they are reserved for patients with severe and disabling Hemifacial spasm or for those who do not respond to treatment with botulinum toxin. 

The other main treatment options that you are likely to be offered are drug treatments, injections of botulinum toxin or surgery.  Some patients may benefit from treatment with drugs such as carbamazepine and clonazepan.  However, to be effective, drugs need to be taken on a long-term basis and may cause unacceptable side effects. In recent years the introduction of botulinum toxin injections has improved the outlook for some hemifacial spasm patients.  Tiny doses of this substance are injected into the facial muscles.  The treatment works by weakening the muscles responsible for the contractions.  The effect of the injections usually lasts for two to three months and so a programme of repeat treatment will be necessary.  Side effects, which are not common and always temporary, include droopy eyelids, double vision and some weakness of the muscles below the eye, but these usually disappear within a week or two.  Approximately three quarters of patients with Hemifacial spasm benefit from botulinum toxin injections. 

Self-help measures such as relaxation techniques.  Homeopathy, acupuncture and dietary management appear to offer little benefit for Hemifacial spasm sufferers.  A positive attitude is important .  Learning about hemifacial spasm and talking to other sufferers may help you to come to terms with your condition and enable you to find ways of coping with your symptoms.  Although Hemifacial spasm is not classified as a Dystonia, the two conditions have much in common. Support from family and friends is also important.  They may also benefit from learning more about Hemifacial spasm so that they can better understand your problems.

Taken from The Dystonia Society ( U.K. ) leaflet.

 

 

Home | Blepharospasm | Generalised Dystonia | Hemifacial Spasm | Laryngeal Dystonia | Oromandibular | Spasmodic Torticollis | Torsion Dystonia | Writers Cramp