Dystonia Association South Africa

(Incorporating Essential Tremor, Tourette's Syndrome

 and other Movement Disorders)

Reg No 004-729 NPO

P O Box 4351, Randburg, 2125 or 3rd Floor Standard Bank Building, Oak Avenue, Randburg 2194

Tel: +27 11 326 2112 Fax: +27 11 326 3041

e-mail dystonia@dystonia.org.za , Web www.dystonia.org.za
Office hours - 08.30 to 14.00 Monday to Friday
Urgent enquiries 082 357 6586
 

YEAR 2006/2007

WE ARE SPONSORED BY THE NATIONAL LOTTERY DISTRIBUTION TRUST FUND
 ADVERTISING SPONSORED BY ETv

 
Home
Blepharospasm
Generalised Dystonia
Hemifacial Spasm
Laryngeal Dystonia
Oromandibular
Spasmodic Torticollis
Torsion Dystonia
Writers Cramp

LARYNGEAL DYSTONIA
 

Laryngeal Dystonia is rare. It has been estimated that an ENT surgeon will see one patient every five years. So a GP may not see a case during his or her working life. Laryngeal  Dystonia is usually confined to the intrinsic laryngeal muscles whose job it is alter the size of the glottic opening by varying the position of the vocal cords.

Likely Presentation

Patients are mainly female, in their 30’s and 40’s. They report mild hoarseness progressing over one or two years to characteristic vocal symptoms; 20 percent of patients have multi-focal features, usually with Dystonias affecting the cranio-cervical region, 5 percent have generalised Dystonia and 10 percent have an associated head tremor.

Adductor laryngeal Dystonia accounts for 90 percent of vocal Dystonia. It involves the adductor laryngeal muscles and leads to a staccato, ‘strangled’ voice, due to increased tone and hyper-adduction of the true, and sometimes the false, vocal cords. Speech is interrupted by voice breaks, rhythm disturbances and pitch variations. Some patients try to overcome these difficulties by whispering or raising the pitch.

Abductor laryngeal Dystonia accounts for 10 percent of cases. This results in a week, husky voice which is suddenly interrupted by periods of breath, whispering aphonia. Sudden spasms of the posterior cricoarytenoid results in incomplete apposition of the vocal cords.

When to refer

Any patient who has had a bad weak or husky voice for more than a month should be referred to an ENT surgeon; a patient with possible Laryngeal dystonia is no exception. Such patients may then be referred on to centres that specialise in voice disturbances. Many patients with Laryngeal dystonia are referred incorrectly for psychiatric assessment at some point because of the curious nature of the voice changes.

Those who get to a specialist centre are likely to be those whose job depends on their voice and who are, therefore, most persistent in getting help. Botulinum Toxin is now the treatment of choice for Laryngeal dystonia. Treatment is carried out under local anaesthetic in an outpatient clinic under EMG guidance. Patients should be warned that they may get mild dysphagia, a weak cough, or slight pain at the injection site.

Exercises to reduce voice tension

1 Relaxation of the throat muscles – Yawn, Sigh.

  • Yawn – When you gently yawn or stimulate a yawn, the muscle of the vocal folds are stretched and opened slightly.

  • Sigh – As you easily vocalise or sigh an "ee" or "ah" on a yawn, the larynx relaxes. Sigh with an easy "ee" sound, slightly elevating the pitch.

2 Relaxation of the neck muscles.

  • Head Rolls. Gently roll the head in circle to the right. Repeat to the left. Move the head slowly. Utilise half circles if it is more comfortable. (Do not perform this exercise if it increases tension.).

  • Elevate the chin, letting the back of the neck move backward until it comes to a comfortable resting place. Slowly lower the chin bringing the head forward to a balanced, relaxed placement that frees the tension in the back of the. (You may have to repeat this exercise more frequently at first to get the feel of the relaxation).

3. Relaxation of tongue muscles.

  • Reduce the tension in the tongue to prevent excessive elevation of the back of the tongue by simply repeating "ah"; consciously releasing and lowering the back of the tongue as you do so. (This takes work but is well worth it!).

4. Relaxation of the neck muscles.

  • Release the jaw gently, moving it from side to side as if you were eating jello or oatmeal (sometimes an easy "mm" sound is more relaxing).

  • Frequently throughout the day remind yourself to easily relax the jaw, making sure that the teeth are not clenched tightly together. (You may need to do this frequently throughout the day the first couple of weeks to effectively combat a pattern of jaw of teeth clenching).

Susan Shulman, MS, COC, SPA

 

 

Home | Blepharospasm | Generalised Dystonia | Hemifacial Spasm | Laryngeal Dystonia | Oromandibular | Spasmodic Torticollis | Torsion Dystonia | Writers Cramp